There are signs that Owen is taking other steps toward the final stages. However, he opened his eyes for about two minutes last night, after being completely unresponsive for the past two days, again showing that he will refuse to follow protocol!  Things have not changed in that they may occur immently, or may not occur for a few days or a week or more.  Again, we are just reminded to take every second we have left with him and cherish it.

  We kept the boys home yesterday to give them the day with their brother. I don't want them to miss a ton of school now, but I do understand that it is important for them to spend time with him now. It's a hard balance-trying to allow them to keep their lives as normal as possible, and not focusing on what is going on here all of the time, and giving them the time that they need/want here with Owen while he is still here.  It is difficult for all of us to know exactly what the right choices are right now, but we are making the choices that we feel are the right ones for all of us.

 Owen is sleeping peacefully. He is not in any pain at all. He looks very comfortable, and we are making sure that he stays that way.

  Also-if you have not read Owen's diagnosis story and would like to, it was posted on Friday.  It gives the story of what led us to where we are today...

  Sending hugs and love to everyone--keep us all in your positive thoughts please, as I imagine the difficult will get much worse as things progress and during the aftermath...