Owen opened his eyes today, ate a tiny bit of yogurt and had some sips of water. I brought out the video camera today and yesterday to capture his awake time, something I should have been doing all along. He is still comfortable. The medication he is on has been working wonderfully for that. He knows that we are with him, he will reach to hold my hand at night and when sitting next to him during the day. He also asks to be held some, which is my favorite time of the day!
I have been reading him his two favorite books every day-White Rabbit's Color Book and Goodnight Moon. If he is asleep when I begin, he always opens his eyes, or I notice that his breathing changes so I know that he is listening, and glad to hear the familiar words. I also play songs from "Little Shop of Horrors" that he used to sing, and the song "Back to Pooh Corner" by Kenny Loggins. He loves Christopher Robin and Pooh. When in Disney, Winnie the Pooh gave Owen some honey to eat. He was pretty excited, and the character assistant told Owen that Pooh doesn't share his honey with anyone, so he is pretty lucky!
I am so thankful that he is still with us. Everyday, I am grateful that we have been lucky enough to have him for another day. I don't know how many we have left, but we so value the ones that we are fortunate enough to receive.
I love you all and am sending you a big cyber-hug. This journey is difficult on all of us. I am so appreciative of the support we have received, but I realize that I am not the only one hurting. May you all find some comfort in happy memories and find beauty in every day.