Hello everyone,
Owen had his MRI on Thursday morning. On Thursday evening while Owen was at his fathers house, he became unresponsive and began having small, focal seizures. When we heard the results of the MRI on Friday, we weren't surprised to learn that the tumors that were present at the April scan have all grown, and in addition, there are new tumors.
Owen currently goes in and out of wakefulness. Sometimes when he is awake, he is completely unresponsive, others he is awake, but very slow to respond. There are also times that he is completely the same, happy little Owen that he has been before all of this happened. Yesterday, he had a few hours when he was playing board games and joking around with us. He has been sleeping pretty well overnight, and is being medicated for pain, so he seems to be pretty comfortable.
Owen has fought and fought this past year, and risen above the seemingly impossible. If it took merely spirit and stubbornness to survive, he surely would outlive any of us. Having him here right now to hold, to smell, to kiss, to listen to breathing is such an amazing thing I can't even find words to describe it. Any lucid moments he has are memories we will have for the rest of our lives. Given past experiences with similar diseases, the home care nurse feels that we are looking at somewhere between a week and a month left with him.
I will do my best to keep this updated as I am able to. Keep alive any happy memories you have of Owen. Regardless of how long his body is able to maintain, his spirit will continue to live on through all of us.