Monday, August 31, 2009

We are back from Florida, and we did stop off at Give Kids the World while we were down there. We saw Owen's star in the Castle of Miracles, and his stone paver, which is in front of the movie theater. We also go to see (and hug!) Mayor Clayton!
There have been several changes that they have made, GKTW has added a My Little Pony spa, a life size Candyland playground, a Boston Market food place, and a bunch of new villas for families to stay in. I wish we had been able to stay there when we went last April-he could have been tucked in by Mayor Clayton and Miss Mary! We had a great time, though. I am so grateful that a place like that exists to help see that children get their wishes!!
September is Childhood Cancer Awareness month. Keep this in mind as you go about your day to day activities. There are children newly diagnosed, currently fighting, some have lost their battle, and others have yet to be diagnosed. Do not believe that you or someone you know and love is immune to cancer. Only when there is a real cure can we call ourselves victorious against this horrible disease.

Sunday, August 9, 2009

I am headed to Disney in about a week for a belated honeymoon. I plan on making a pit stop at Give Kids the World to see Owen's paving stone and star in the castle. I wish he was going to be there with us. I have read that there have been several changes to GKTW since we were there last April.
Going to Disney itself will be bittersweet. It holds many fond memories of Owen's Make a Wish trip, but it will be sad to know that he will not be able to visit there again. What an awesome trip he had when he went, though! He lived like a King-which he was!!

Tuesday, July 28, 2009

There is a message board where parents who have lost their child to a brain tumor can talk. One was sad because it had been 6 months since her son had passed away, and that it was getting much more difficult to deal with the pain. How true. Time does not always make things better. Sometimes it makes it worse...
The numbness wears off. Apathy takes over. Then the pain begins. It affects us all differently, and at different times. There is no such thing as "normal grieving". I get annoyed when watching shows that make ignorant comments like "That person was not acting like a parent who just lost his/her child." Really? You would know this because you have experienced the death of your child? Even if so, every person handles his or her grief in their own way. For instance, on the day Owen died, Matt, the boys and I went out for lunch. We needed to do that for ourselves, to normalize things, to get out of the house for a little bit and focus on something else, on each other. There were no tears at lunch. Some people would have looked at us shocked and appalled, I am sure, if they had known that we were out to eat and that Owen had just passed away.
I get so angry when people judge other people. NO ONE knows what that other person's life circumstances are, and even if they share similar experiences, everyone deals with things differently. Instead of being critical of the person for not doing things the way that you may do them, try to have some empathy and see that just because you may have expectations for how something "should be" does not mean that you are right. Also, accept that there may be more than one "right" way to do things, and your "right" way, may not be right for someone else.
Let's give a little more love, and alot less judgement, hatred, criticism, and anger.

Monday, July 20, 2009

I think about how, one year ago, right at this moment, Owen was alive and with me. He still had quite a journey ahead of him, but he was here-awaiting our Christmas celebration on July 21...So much has changed in a year. Soon, I will no longer be able to write things like "Owen was alive a year ago today..." That is incredibly sad for me. What I wouldn't give to give him a huge hug and hear his sweet voice right now...
love you, Frogger.

Tuesday, July 7, 2009

...missing the Frog man